Focus on this seizure!


Focal seizures

So, what”s going on here? This is a part of my disease but I have not shared with anybody besides my wife. I did a brief post on Facebook about it, this is just a follow-up blog to explain it more. Consider yourselves lucky you get this level of insight. I apologize for the portrait mode video! 🙂

This occurred on 24th January 2019.

This is called a focal seizure or (partial seizure) full awareness.

A lot of people have asked me what it’s like, so I will attempt to answer some questions here.

  • Does it hurt?
    • Not really. Sometimes it can though!
  • Do I know when they are coming on?
    • Yea you get this odd sensation wherever it’s about to strike. I can’t really explain it sorry.
  • Can you talk while it’s happening?
    • Yes! I can carry on a full conversation while it’s happening.
  • Are there any drugs that help?
    • Since they started happening in April of 2017 they have had me on the following drugs:
      • Keppra
      • Dexamethasone
      • After the last seizure they put me on an additional drug that I forgot the name of. I we’ll update this post when I remember.
      • I remember now: it’s a drug called Clobazam.
  • How long does it last?
    • Hehe, about 3 minutes.
  • Where does it affect you?
    • They used to be mostly in my right leg, but now it’s my right arm.
    • Sometimes it’s my lower arm, sometimes it’s my shoulder, and sometimes it’s my wrist. I really hate when it affects my wrist as you literally can’t use that hand for hours after.
  • Are you holding your hand with your other hand?
    • Why yes I am! If I don’t do that then my entire arm will flail everywhere and I might hurt myself.
  • What does it feel like after?
    • After there is a lot of weakness in the affected area. Some numbness too!
  • So what’s next?
    • I have an MRI scheduled for February 14th at 12:50 a.m. Yes am!
    • I get the results on Friday afternoon.
  • Was there anything different this time?
    • Yes I’ve had these seizures before last year. But this time it feels different and it’s actually scaring me a lot!

I’m expecting the worst. That’s why I need you guys more than ever now.

I just want to reiterate that you guys are amazing!

-Ya boy

PS. if anyone comes across typos feel free to let me know! I promise I won’t be offended.

Special thanks to Cheryl for asking most of the questions I answered in this post!

2 comments on “Focus on this seizure!”

  1. Valerie Chance says:

    I was recently diagnosed with partial seizures. This is really all new to me. A few days ago I began experiencing a painful really bad cramp in my right thigh. I usually get these partial seizures affecting the right side of my head. Just wondering if these cramps in my thigh are connected.

    1. waynehart says:

      You really need to talk to your doctor. I am not qualified to give that kind of advice.

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