I got 99 problems and 47 brain tumours ain’t one?

We’re all done! (My videos still suck)

May 4, 2018

My last and toughest gamma knife session. It was long and hard. (hehehe) I had to be in a new position for the machine to target these last tumours. It was uncomfortable and I had to stay that way for about 45 minutes.

What’s next for Wayne-o?

Well I haven’t experienced any bad side-effects yet. I’m really tired but that’s because I’m not sleeping well due to the steroids and having a little 3 year old who likes to wake up at 5:30am. I can’t really blame it all on her though, because lately I wake up at around 1am and can’t fall back asleep for the life of me. They radiation team told me that for the next while I should keep and eye out for the nasty side effects – headaches, nausea, vomiting, sudden muscle weakness etc. These could be signs of swelling in the brain. If that happens then off to the E.R I go and get checked out.

I also start my cancer drug back on Sunday, I’m a little worried about how long I’ve been off the drug and what’s happening in the rest of my body. So I’m happy to resume the drugs.

I do a follow-up brain scan (MRI) in 6-8 weeks to check on everything and we take it from there.

I also see my oncologist on Monday 7 May 2018. We’ll discuss my treatment plan and most likely book a CT full body scan to check on things.

For this weekend I plan on celebrating making it through those 7 grueling sessions! Stephanie and I got a babysitter for the kids and we’re going out with some friends. First Stephanie and I are having margaritas for cinco de mayo then steaks at the Keg. I already have my order placed in my head – baked garlic shrimp to start, 20oz bone-in ribeye main with a side of fresh veggies (not the fries. Ok, maybe the fries). I will likely add crab legs to this meal and have another margarita or two. Should I get the Caesar salad too? Not sure yet. We’ll see how I feel. Also the bread obviously! Then at the movies, definitely popcorn and M&M’s! This is going to be a random blood sugar night, but I’ll correct it with insulin when I get home. 🙂

How’s the diabetic thing going?

It’s not bad. I think I found a good balance of baseline long acting insulin and just eating better. Hopefully as I taper off the steroid I get better. The schedule has me ending the dose on May 31. Unless I get those nasty side effects in the brain, then hopefully I’m off them for good and my body returns to normal. There’s a chance that the steroid induced type 2 diabetes can be permanent though. 🙁

What else do I have planned?

I’m going to start creating mobile apps. At first I’m going to create a blood glucose tracking app that’s tailored for me. None of the ones I found on the App Store or Play store work for my needs. So I will build my own, and if it’s any good maybe I will list it on the play store for anyone who has similar needs.

I also want to start working out again to regain all the lost muscle mass. Simple squats, curls and push-ups to start. I’m also walking more and have my goal set to 2000 steps a day. I’ve blown past that in the last while due to all the walking at the hospital. On days when I don’t go out, I can do 2000 by walking around the house and going up and down the stairs.

What’s up with your foot?

Well there’s a tumour on my motor cortex that’s causing my right foot to not respond. I can’t wiggle my foot or flex it upwards. This makes it hard to walk, but for some reason I feel like it’s a lot better. I use a foot brace when I go out to help. It keeps the foot from drooping downwards.

It sucks that I can’t drive because I really miss it! I’m at risk for seizures and with the foot thing driving is not looking likely for a while! So come pick me up and take me out! 🙂 I can always Uber like the cool kids I guess?

 

As always, thanks for all the support! #hartnation is strong indeed!

Thanks for reading.

-Ya boy

 

Ps. Let me know if you find any typos and if you have video tips. I need to correct the lighting as well.

 

Music credits:

“Be Happy” –Dyalla

 

 

 

Leave a Reply

Your email address will not be published. Required fields are marked *